초록 열기/닫기 버튼
장애인복지의 패러다임이 자립생활모델로 전환되면서 시설거주 장애인의 탈시설 및 자립이 지속적으로 확대되고 있다. 따라서 본 연구에서는 발달장애인 당사자 관점에서 자립생활 경험을 포괄적이면서도 심층적으로 탐색해 봄으로써 발달장애인의 실제적인 자립생활을 위한 정책적․실천적 지원체계를 모색하기 위해 수행되었다. 장애인자립생활센터의 추천을 받아 탈시설 이후 지역사회에서 1년 이상 자립생활을 지속하고 있는 성인발달장애인 9명을 연구참여자로 선정하여 개별심층인터뷰를 통해 자료를 수집하였다. 또한 발달장애인 당사자의 구술자료를 보완하기 위해 발달장애인을 지원하고 있는 지원인을 인터뷰 대상자로 추가하여 조사하였다. 질적 자료분석 방법으로 질적 사례연구를 활용하여 연구참여자들의 경험을 바탕으로 성인발달장애인의 자립생활 과정에서 겪는 경험을 주제와 의미단위를 중심으로 범주화하여 분석을 수행하였다. 질적 사례분석 결과, ‘척박한 땅에 자립의 꽃씨를 심다’, ‘자립의 싹을 틔우다’, ‘성장통을 겪다’, ‘된서리를 맞다’, ‘자립의 꽃망울을 피워가다’ 등 5개의 핵심주제가 도출되었다. 본 연구결과를 토대로 성인발달장애인의 안정적인 자립생활을 위해 정책적․실천적 제언과 함의를 제시하였다.
As a paradigm of the welfare for the disabled has been transformed into the independent living model, the deinstitutionalization and independent living of people with disabilities living in facilities are also continuously expanded. Therefore, the study explored the experiences of independent living among adults with developmental disabilities deeply and comprehensively, based on the perspective of self-representation, and it also sought policy support measures and practical support systems for the actual independent living of adults with developmental disabilities. A total of nine adults with developmental disabilities who have been living independently for more than one year in the community after deinstitutionalization were selected as the study’s participants and it collected data through individual in-depth interviews. The nine people with disabilities selected for the individual interview were recommended by the Independent Living(IL) centers. In addition, in order to supplement the interview data of the person with developmental disability, several care-givers who support the people with developmental disabilities were added as interview subjects and interviewed. The study utilized the qualitative case studies, based on the experiences of the study’s participants, the experiences of adults with developmental disabilities in the course of independent living were categorized into the subjects and meaning units and analyzed. As a result of qualitative case analysis, key themes such as‘planting seeds of independence in the barren land,’‘nurturing the buds of independent living,’ ‘experiencing a growth ache,’‘suffering a bitter blow,’and blooming the buds of independence’were identified. Based on the results of this study, policy implications and practical suggestions for the stable independent living of adults with developmental disabilities were presented.
키워드열기/닫기 버튼
adults with developmental disabilities, independent living, independent living experience, qualitative case study
